THE FACE OF MS..

We are your parents, your children, your brothers and sisters; we are the person down the street; we are that lady or fellow who may walk a little 'funny' at the grocery store. We are the people that you "tsk, tsk" over because we might look "too good" to use a handicapped parking space. We are the folks who may not be able to get out to the Church or Temple every weekend; we are your peers; we are human beings.



We are the face of Multiple Sclerosis. A face that is nearly every ethnicity; that comes from nearly every country, that does not discriminate by social standing or class or financial or educational background or language or religion. We are both able to walk unassisted and use canes and walkers and wheelchair users; we jog and swim and partake in sports; we are housebound, we use scooters; we need respirators. We are everything in between. We are visually impaired and we are not. We are at every level of physical ability.



Of course, we "look so good" while we're doing it. We hear that phrase every day of our lives. Sometimes that phrase is meant as a compliment and sometimes it is meant to hurt or meant to shame us into doing something of which we may not be currently capable. We may be able to do that something tomorrow, though, or next week; Multiple Sclerosis is like that. We are like that.



Some of us are hearing impaired; yet all of us occasionally have people talk louder to us. "HOW ARE YOU D-O-I-N-G????" they'll scream, speaking to us as though we were either hearing or intellectually impaired. "YOU LOOK SO G-O-O-D!!!!"



Of course we do. Thank you very much. We are, in fact, the very best looking people in the handicapped community. We have secret beauty pageants every year, to decide which of our number is the absolute best-looking. Billy Crystal emcees, as his character Fernando; "..and you look MAHVELOUS my dear; absolutely M-A-H-V-E-L-O-U-S..."



We are brave. We are fragile. We want to live, and we want to end it all. We look for support and we want to stand alone. We are Everyperson. We are the People with Multiple Sclerosis. We are People, Just Like You...

WHY DO PEOPLE THINK THAT THEY ALWAYS KNOW WHATS BEST IN OTHERS LIFE ???

SHOULD THEY NOT CONSONCRATE ON THERE OWN HUMBLE LIFE'S AND MIND THEIR OWN BUSINESS. SHOULD THEY NOT TAKE A LOOK AT THERE OWN LIFE'S AND ASK THEMSELVES THE QUESTIONS TO THEMSELVES THE THINGS THEY WANT ANSWER'S FROM YOURS .

WHY DO PEOPLE THINK TO THEMSELVES WHY US ?? WHY ME ?? .  DO THEY NOT WISH TO PUT THEIR MINDS TO THE QUESTIONS THAT THEY WISHED THAT YOU WOULD ANSWER FOR THEM ?? .

 IF THEY GO  DAY BY DAY THINKING THE WHAT IF'S AT ONE POINT THEIR BOUND TO GET BORED FED UP AND CONDEMNED TO A SAD LIFE.

WISE UP GET ON WITH YOUR LIFE AND GIVE PEOPLE A BIT OF A CAREFREE LIFE.

PEOPLES  HAVE THERE OWN PROBLEMS TO DEAL WITH, DON'T ADD MORE TO THEM.....

15 yrs wedding anniversary

RED MIST

DEEP IN THOUGHT...

THIS PAINTING REPRESENTS MY DISFIGURED AND TRANSPARENT BODY THINKING ABOUT HOW ONE WOULD MIGHT VIEW & PERCEIVE ME..

TWO BOLD LETTERS

Morning again and its so early i wish i could sleep it seems to go from one extreme to another but either way i always feeling tired i think fatigue is taking over at the moment.

What is worse no sleep or too much sleep?

I wish i had a answer to the question then i wouldn't be sitting here in the middle of the night in front of my laptop going on muttering about nothing really . I keep thinking back to days/nights when my body would have held out long enough with what ever i threw at it but i suppose the body does get older and tiring from this stupid disease i have with my favourite two letters which follow me about where ever i go outside/inside to the shops and even when im sleeping which i can never ever get away from them , two bold letters MS .

Why they ever choose me i will never know that's the thing no one can ever tell me why they ever wanted or decided that they would want to follow me about or want to keep me company , why they would like me to feel there pain, why they would get great pleasure from seeing me struggle to climb the stairs, and why these two letters would even want to take an interest in me maybe it was because i was having too much enjoyment with my family and my life .

Anyway MS your here with me no matter when so you better get used too the fight that i will put up against you , you may slow me down , you may take away my memories at times but just remember i will give you one hell of a fight.

RELAPSE

WELL ITS BEEN ANOTHER COUPLE OF WEEKS SINCE I'VE MANAGED THE TIME AND ENERGY TO SIT IN FRONT OF THIS SCREEN TO PUT A FEW LINES DOWN.

WELL AS YOU KNOW I SUFFER FROM RELAPSING REMITTING MULTIPLE SCLEROSIS WHICH IS QUITE A TITLE TO LIVE WITH BUT THINGS COULD BE ALOT WORSE ON THE INSIDE AND ON THE OUTER AS WELL, SO I WONT BORE YOU WITH ALL THE DETAILS THAT GO ALONG WITH THE TITLE ( FOR THE TIME BEING ANYWAY ) .

FOR PEOPLE WHO ARENT SO SURE ABOUT M.S I MUST EXPLAIN THAT THERE ARE DIFFERENT STAGES OF THIS CRIPPLING ILLNESS MOSTLY SET OUT AND "LABELED" IN STAGES .

SO ANYWAY THE LAST COUPLE OF WEEKS I'VE BEEN SUFFERING WHAT IS KNOWN AS A RELAPSE ( MEANING SYMPTOMS APPEAR ) AND THEN FADE AWAY, EITHER PARTICALLY OR COMPLETELY ( REMISSION ) .

SYMPTOMS WHICH COME AND GO CAN SOMETIMES BE CONSIDERED A RELAPSE SAY OVER A PERIOD OF TIME WITH ANY LASTING OVER HOURS OR DAYS. THEY OFFEN STAY WITH YOU OVER A PERIOD OF WEEKS THOUGH THIS CAN VARY FROM SHORT TO LONG PERIODS AND IN THERE WORSE ACUTE STAGE EVEN MONTHS SOMETIMES REQUIRING THE NEED FOR HOSPITAL TREATMENT.

SO THE LAST COUPLE OF WEEKS I'VE BEEN TREATING MYSELF WITH ORAL STEROIDS WHICH I TEND TO TAKE OVER A TWO WEEK PERIOD , I FIND THAT MY FLARE UP ISNT JUST AS BAD AS IT WAS AND I CAN AND AM STARTING TO FEEL ABIT OF RELIEF FROM THEM.

SO THATS ALL I CAN MANAGE AT THE MOMENT HOPEFULLY I WILL BE ABLE TO FORCE MYSELF TO PUT DOWN A FEW MORE WORDS SOON BUT FOR NOW MUST GO AND HOPE FINGERS CROSSED MY BODY STARTS TO FEEL LIKE MY OWN AGAIN SOON....

TIME GOES BY SO QUICK

HAVE BEEN SITTING HERE TONIGHT SO I JUST THOUGHT TO MYSELF MUST CHECK MY BLOG AND TO MY DISBELIEVE I DIDN'T REALISE THAT ITS BEEN NEARLY TWO WEEKS SINCE I ACTUALLY SAT AND EVEN LOOKED NEVER MIND WRITING ANYTHING.

TIME SEEMS TO PASS US SO QUICK SOME TIMES WHEN ONE HAS OTHER THINGS TO THINK ABOUT THAT TAKES AWAY THE TIME MAYBE USUALLY SPENT ON THINGS LIKE THIS.

MY ELDEST GIRL STARTS A NEW PRIVATE SCHOOL TOMORROW AFTER WHAT CAN ONLY BE DESCRIBED AS A WASTE OF OVER TWO YEARS EDUCATION AT THE UNDERACHIEVING GRAMMAR SCHOOL WHICH SHE HAS BEEN ATTENDING.

SHE, LIKE MY WIFE AND MYSELF JUST HOPE THINGS CAN BE GOT BACK ON COURSE AND THE START OF WHAT COULD BE AND START MAKING UP OF TIME/EDUCATION THAT HAS BEEN LOST.

SO LETS HOPE FOR ALL OF THIS THAT THIS IS A TIME WHEN WE CAN START PUTTING THE RIGHTS RIGHT AND THE WRONGS BEHIND US.